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本文简介:爱莎?特?卡尼出生时,由于先天的身体缺陷,被断定存活不了多久。今天,她要说:"我证明他们都错了 Aisha Te Kani is a miracle woman. Born prematurely by caesarean section in 1980, with a malformed heart outside her body, Aisha was never expected to live. But the warm, friendly young woman who recently celebrated her 20th birthday says simply: "I proved them all wrong. Twenty years have come and gone and I'm still here. " 爱莎?特?卡尼是一位传奇女性。1980年剖腹产出生时,她是个早产儿,并有一颗畸形的心脏长在体外,因此她立即被断定为不能存活。但是,这个热情友善的年轻女性最近却庆贺了她20岁的生日,她只是说:"我证明他们都错了。20年过去了,可我仍然活着。" [2] Not only was Aisha born without a breast bone, but her heart was malformed, with a hole between the two pumping chambers and a restricted artery leading to the lungs. It is likely her abnormalities developed in the first six to eight weeks of pregnancy. 爱莎出生时不仅没有胸骨,而且心脏是畸形的,两个心室之间有一个洞,一根较常人短些的动脉通向肺部。她的畸形似是妊娠的前六周到八周形成的。 [3] Her condition known as "ectopia cordis"?the heart outside the ribcage?is extremely rare, and its causes are unknown. It is usually fatal in infancy. 她的这种情况被称为"心脏异位"??心脏在胸腔外??是极其罕见的,其原因目前尚不得而知。在婴儿期,这常常是致命的。 [4] Pediatric cardiologist Dr. Louise Calder says that years ago doctors who had a patient with condition of "ectopia cordis" would try to put their patient's heart back into the chest but the procedure did not work. The reason is that people born with the heart outside their ribcage do not have a hole in the chest cavity to fill up. There is no room for the heart in its normal position. However, doctors conducted several operations to help Aisha's heart work normally, and to protect the vulnerable organ outside her body. 儿科心脏病学家路易斯?考尔德博士说,几年前,医生们会试图将患有"心脏异位"的病人的心脏放回胸腔,但这个方案无法顺利实施。原因是,出生时心脏就在胸腔外的病人,其胸腔里没有可容纳心脏的空穴。也就是说,其通常的位置上本身就没有存放心脏的地方。然而,医生们做了好几个手术以帮助爱莎的心脏正常搏动,并保护她这个体外容易受到伤害的器官。 
爱莎已习惯于人们盯着看她上衣内那块搏动的东西。大多数人都相信那就是她跳动的心脏,由一块移植的皮肤覆盖保护着,他们都很感兴趣,而一点也不害怕。"我就是这样的,"爱莎极富哲理地解释说,"我就得这样活着。" [6] She has often been asked if she has a kitten under her jersey. "One lady in a clothes shop thought it was a ferret and was waiting for it to jump out, " Aisha laughs. 常常有人问她,衣服里是否藏有一只小猫。"有一次,一家成衣店的一位妇女以为是只黑足鼬,还等着它跳出来呢,"爱莎笑着说。 [7] Now the courageous 20-year-old has accepted that her heart will remain outside her chest?"there is nowhere else for it to go." 这位勇敢的20岁的女性现在已接受了这个事实:她的心脏将一直呆在体外??"它没别的地方可去。" [8] Aisha also has club feet and has to wear built-up shoes. This has limited her physical activity?and her mother, Moana, regards that as a blessing. It reduces the strain on her heart and means she is less likely to knock the vulnerable organ or risk a potentially fatal fall, says Mrs. Te Kani. "The Lord has a way of evening people out, " says the religious Mrs. Te Kani. "That is probably why she has funny feet. " 爱莎还长着一双畸形的脚,得穿后跟垫高(但不是高跟鞋)的鞋子。这限制了她身体的活动??不过,她的母亲莫纳认为这是幸事。它减少了她心脏的负担,而且意味着她不太可能碰撞那容易受伤的器官或处于潜在的致命的摔跤的危险中,特?卡尼太太如是说。"上帝总有办法让人们平等,"笃信宗教的特?卡尼太太还说,"这也许就是她有这双奇怪的脚的原因吧。" [9] Efforts were made to straighten Aisha's feet when she was 12 and 13, putting her in hospital for lengthy periods and in a wheelchair for a year. "Then she had a spurt of growth and her feet went back to the way they were, " her mother says. 在爱莎12岁和13岁时,曾做过努力想拉直她的脚,为此她在医院里住了相当长的一段时间,还在轮椅上呆了一年。"接着她突然长大,脚仍旧回到了原来的样子,"母亲说。 
爱莎是一个酷爱学习的优秀学生,后来,她还去了澳大利亚和泰国旅行,除了体育运动,她不觉得自己失去了任何东西。 [11] "I have a full life and I have the Lord to thank for that, " says the committed Christian, who is serving an internship at the Tauranga Worship Center. She expects to become a youth leader in her church, where she has already preached to the congregation. 我的生活很充实,我得感谢上帝,"这位虔诚的天主教徒说。当时,她正在陶朗阿礼拜中心实习,希望成为那个教堂里的一名青年领袖,在那儿,她早已开始向会众布道。 [12] "She got a standing ovation, " says her proud mother. "I believe God is going to use her like that. We just support in what she does. " Aisha also has three brothers who are "cool" and offer their support to protect her.]" 大家起立欢迎她,"母亲自豪地说。"我相信上帝就是要她这样做的。我们要做的就是支持她的行动。"爱莎还有三个非常"帅"的兄弟,都极力地支持保护她。 [13] Aisha's unusual name is Indian. "We called her that because at the time, we were into the music of Stevie Wonder and that was his daughter's name, " says Mrs. Te Kani. Later, they found out how apt the choice was?Aisha means strength. 爱莎非同寻常的名字源自印地安语。"我们给她取了这个名字,是因为那时我们恰好对史蒂夫?旺德的音乐很着迷,爱莎正是他女儿的名字,"特?卡尼太太说。后来,他们发现这名字取得真是好极了??爱莎意味着力量。 [14] Although she did not walk until she was nearly five years old, Aisha has rarely been sick. Over the years, her school attendance record was almost 100 per cent. 尽管爱莎到了将近5岁才学会走路,她却不常生病。这些年来,她在学校的出勤率几乎是100%。 
在学完高年级的最后一年课程后,一所专科学校录取爱莎学新闻。但就在课程开始之前,政府抽回了贷款,学习也就搁在了一边。于是爱莎就开始学计算机课程,可她仍旧喜欢在日记中写诗和写故事。周五晚上,她要帮助照看市中心的一家青年人俱乐部,常常工作到很晚,除此之外,她一直坚持着常规的生活。 [16] "I don't have to tell her what to do, " says her mother. "She looks after herself, physically and spiritually. " Aisha has not been back to Green Lane Hospital for a check since she was 10, but Dr. Louise Calder clearly remembers the "astonishing" attitude of acceptance and posi-tivity the parents had passed to the girl.]" 我没必要告诉她该做什么,"她母亲说,"她会自己料理自己,无论是身体上还是精神上。"自10岁以来,爱莎再也没有去"绿径"医院检查,但路易斯?考尔德博士却清楚地记得她身上得之于父母的"异乎寻常"的面对现实的勇气和积极的精神。 [17] Meanwhile, Aisha "goes with the flow" and takes each day as it comes. At the same time, for her mother Moana every day that Aisha continues to grow strong and look after herself "is a blessing". 在此期间,爱莎"随波逐流",勇敢地面对着自己的每一天。与此同时,对母亲莫纳来说,爱莎一天比一天强壮并能自己照顾自己实在是"一件幸事"。
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